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Neuro-Oncology· 2015Q1

CBTRUS Statistical Report: Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2008-2012

Quinn T. Ostrom, Haley Gittleman, Jordonna Fulop, Max Liu et al.

Short summary

This report presents population-based data on primary brain and central nervous system tumors diagnosed in the US between 2008 and 2012.

AI-generated from the title and abstract; the full text is not read.

Key points

  • Data covers primary brain and CNS tumors diagnosed in the US from 2008-2012.
  • Utilizes population-based data from NPCR and SEER programs.
  • All primary malignant and non-malignant brain tumors are reportable by law.
  • Data is collected by tumor registrars and submitted to state Central Cancer Registries (CCR).

AI-generated from the title and abstract; the full text is not read.

Abstract

CBTRUS does not collect data directly from patients' medical records. As noted, data for CBTRUS analyses come from the NPCR and SEER programs. By law, all primary malignant and non-malignant brain tumors are reportable diseases. Hence, tumor registrars in treatment centers collect these data and send this information to CCR in their states where they are collated and de-identified and sent to NPCR and SEER. Brain and CNS tumors are reported using the site definition described in Public Law 107-260. On an annual basis, NPCR secures permission from CCR to release their data on brain and CNS tumors to CBTRUS. CCR plays an essential role in the collection process, diagrammatically presented in Figure These data are population-based and, therefore, by definition, represent a comprehensive documentation of all cancers diagnosed within a geographic region over a period of time.

The authors' abstract, as published at the source. Neuro-Oncology, 2015 · DOI ↗

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Field: Pediatrics, Perinatology and Child Health

Pediatrics, Perinatology and Child HealthMedicine