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Journal of Cancer Survivorship· 2026Q1

Lived experience leadership in cancer research: a scoping review of conceptual definitions, roles, responsibilities, and impacts

Clarissa E. Schilstra, A. Glinatsis, M. Emery, B. Zebrack et al.

Short summary

A scoping review of 12 publications (2015-2025) found lived experience leadership in cancer research is inconsistently defined and rarely involves substantive leadership roles, with only four publications describing such involvement and two using the 'embodied researcher' concept.

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General Health ProfessionsHealth Professions