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Healthcare· 2026Q1· Review

“Managing the Binder”: A Systematic Review of the Burdens Experienced by Patients and Carers in Managing Personal Health Information Across Fragmented Healthcare Systems

Akshay Soni, Marcel Chua, Warren M. Rozen, Lisa Ellis

Short summary

A systematic review of 11 studies found that patients and carers experience significant burdens managing personal health information (PHI) across fragmented healthcare systems, with paper-based methods remaining common due to their visibility and portability.

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Health Information ManagementHealth Professions